Ashley Hegi and Progeria

A southern Alberta community is remembering a girl described by teachers as a four-foot-tall teen with a 10-foot-high attitude who defied the odds of a rare genetic disease that causes premature aging.

Ashley Hegi, 17, was one of 53 people in the world — and three in Canada — with Hutchinson-Gilford Progeria Syndrome. There is no known cure, and most children with the condition usually die around age 13.


Leave a Reply

Your email address will not be published. Required fields are marked *